Clinic Check Up

Sorry guys it's been a while since the last post. Things have been crazy around here as always. I just want to drop in a say that Cammie's routine visit to the CF clinic went pretty good. Her throat culture came back with normal oral flora (normal, no infections).So that is really good news. Her weight, height and BMI (Body Mass Index) were all above were they needed to be. Because of her culturing Pseudomonas last throat culture the doctor had put her back on the inhaled antibiotic TOBI. This, as you remember, is done in 28 day's on and 28 day's off routine. Since this throat culture came back normal, we need to the next one to be normal also... this will allow us to discontinue the TOBI! So hopefully that will be the case at the next visit. The doctors talked to us about a new inhaled drug called Cayston, which is used just like TOBI to treat infections. The only difference is that the Cayston is 3 times a day, 5 min treatments, compared to the 2 times a day, 30 minute treatments of TOBI. Carrie and I discussed it and we decided to stick with the TOBI since it seemed to be working pretty good. The only problem we have found with the TOBI is it makes Cammie cough a lot. It's a side effect of the drug but, she seems to cough a lot more then what they are describing. We decided to put her on Xopenex before all inhaled treatments. Xopenex is what they call a Bronchodilator, or basically it opens the lungs up allowing the rest of her medication to get deep down in her lungs. This has seemed to help her a lot with the coughing, thank goodness. Other then that the doctor's appointment went very smooth... in and out.

In case you didn't see it last night... Christina and Ali (both with CF) made it though to the semi-finals of America's Got Talent! If you haven't seen them please google them or look them up on Youtube.

Hope all is well with everyone, and please if you have any questions please feel free to ask me!