Clinic Check Up

Sorry guys it's been a while since the last post. Things have been crazy around here as always. I just want to drop in a say that Cammie's routine visit to the CF clinic went pretty good. Her throat culture came back with normal oral flora (normal, no infections).So that is really good news. Her weight, height and BMI (Body Mass Index) were all above were they needed to be. Because of her culturing Pseudomonas last throat culture the doctor had put her back on the inhaled antibiotic TOBI. This, as you remember, is done in 28 day's on and 28 day's off routine. Since this throat culture came back normal, we need to the next one to be normal also... this will allow us to discontinue the TOBI! So hopefully that will be the case at the next visit. The doctors talked to us about a new inhaled drug called Cayston, which is used just like TOBI to treat infections. The only difference is that the Cayston is 3 times a day, 5 min treatments, compared to the 2 times a day, 30 minute treatments of TOBI. Carrie and I discussed it and we decided to stick with the TOBI since it seemed to be working pretty good. The only problem we have found with the TOBI is it makes Cammie cough a lot. It's a side effect of the drug but, she seems to cough a lot more then what they are describing. We decided to put her on Xopenex before all inhaled treatments. Xopenex is what they call a Bronchodilator, or basically it opens the lungs up allowing the rest of her medication to get deep down in her lungs. This has seemed to help her a lot with the coughing, thank goodness. Other then that the doctor's appointment went very smooth... in and out.

In case you didn't see it last night... Christina and Ali (both with CF) made it though to the semi-finals of America's Got Talent! If you haven't seen them please google them or look them up on Youtube.

Hope all is well with everyone, and please if you have any questions please feel free to ask me!

What's been going on?

Sorry it's been a while since my last post. Things have been really busy around here.

Cammie once again will be an ambassador to the "Single Greatest Night". This is a fundraising event from the Cystic Fibrosis Foundation that showcases the top singles in the Jacksonville area. Each "Honoree" pledges to raise a minimum of $1500.00! And with 40 or so of them, it comes out to be a big chunk of change! So this year Team Cammie is going for the highest fundraising team! Come on Team Cammie.

As far as Cammie. She's doing okay. She just started her 28 days of TOBI (inhaled antibiotic) this past week and hopefully this will get rid of her infection. Here's praying since the TOBI makes her cough all the time. We go back to the CF clinic on July 6th so I will have more to report then.

Did everyone see the two girls on America's Got Talent last night. They both had CF!!! And man were they amazing!! If you haven't seen it, look it up. Their names were Christina and Ali, on the Portland auditions. What a great way to bring CF to the forefront!

Also please keep Courtney Starr and her family in your prayers...she is currently in the hospital for a two week tune up. She seems to be feeling better, but a prayer always helps.

On a different note (well not CF related). A guy that I work with niece was recently diagnosed with Leukemia. Her name is Elizabeth Forte and she is three years old. She needs every one's help. While undergoing Chemo she will need numerous blood transfusions. So the family is asking everyone and anyone to donate blood at your local FL/GA Blood Alliance. It doesn't matter what your blood type is, as they will bank your blood and send her the blood type that she needs. Her account number is 0048. Please everyone come out and support her!!

Well enough of me talking...need to go and enjoy the beautiful weather we are having. As always, let me know if you have any questions!

Cammie's Crew "Maryland Edition" Team Picture

Totals for "Great Strides"

Here is the totals so far for Cammie's "Great Strides" teams. Dont forget, the fundraising never stops!

St Augustine: $1325
River Walk: $1807.00
Team Mayo: $1000.00
Maryland: $1507.25

Total: $5639.25

Wow, it's a team record!!! Thank You all for coming out and supporting the CFF. You truely don't know how much it means to Cammie! If you haven't donated and still want to, click on the link to the right of my page. Thanks again for helping to make CF stand for Cure Found.

Maryland "Great Strides" Walk

The Howard County Great Strides Walk raised a grand total of $172,000!!!!

What a successful day it was! There was music by DJ Keith, a silent auction, demos by Kangaroo Kids and Baltimore Tae Kwan Do, and even a Cure CF Racing- race car. Thank you to all of my family and friends that donated. And let's give a huge Thank You to the ones that walk with us!!
Come out next year and join us in making CF stand for Cure Found!!!!!

Cammie's Crew (Maryland Edition) raised a total of $1507.00!!! And donations are still coming in!!!

I will get back to you on what Cammie's Crew did as a whole.

Update on Cammie. She's very excited to get off her inhaled antibiotic. It cuts out around an hour of treatments a day. She's off this for the next 28 days, and then we are back on for 28 days. Other then that she is doing pretty good. Next CF Clinic is in July, but I will be updating the website regularly.

Hope all is well

Maryland "Great Strides Walk"

Hey everyone, just wanted to let you to check back in a few for a recap of the Maryland Chapter of Cammie's Crew. My sister Kelly lead the team this year and from what she tells me they had a great time. She is in the process of writing something for me to post....oh and pictures to. From what I hear the walk as a whole raised around $152,000 and had around 600 people!!! WOW. Check back soon for the details!

OH and one last thing.....Cammie is going to be off TOBI for the next 28 days starting Wednesday!!!! OH YEAH