Clinic Visit 04/10

Hey Everyone!

Well we had Cammie’s normal quarterly check up last week at the CF Clinic. Let me first start off by saying, Cammie loves this place….no not really. A week prior to her appointment she we went to the lab to get her yearly blood work completed. You would think that would be a huge problem, but nope. Of course Cammie cried but that was about it, no screaming or kicking. Thank god. Man those people at the lab have a rough job, always drawing blood from kids every day. This check up was a important one. If Cammie’s throat culture came back with normal oral flora (Third time in a row), she would be taken off her inhaled antibiotics and placed back on the CF White Team (Just meaning she wasn’t growing anything in her throat culture). But that was not the case, go figure right. Her throat culture came back with Pseudomonas again (same as her other throat culture). What does all this mean? Well, Cammie will continue her inhaled antibiotics for the next 28 days, then she has a 28 day break. They do this so the bacteria doesn’t become resistant to the antibiotic. They also put her on a pill antibiotic, Cipro, for two weeks. This is a pretty strong antibiotic that takes its toll on her. But she keeps fighting through it.

Well on to the good news. Other then the throat culture, Cammie is doing great. Her weight, height, and BMI are above were then need to be!!! Her dosage for her digestive enzymes was increased, this means she will absorb more of the fat from what she eats. Before this she could only absorb around 14-15 grams of fat each meal, but now she’s up to around 20-21 grams. Her yearly labs came back well within the normal range. All of her vitamins were also normal. Other than that they were very pleased with her. We go back to the clinic in July. So hopefully we can get this throat culture back to normal.

So with the added antibiotics, Cammie does around 1 ½ hrs of treatments and takes around 15-20 pills a day. Not too bad for a 2 ½ year old is it.

Just a reminder for everyone, Kelly is heading up the CF walk in Maryland this year. If you are interested please contact her. It’s going to be a great time!!

I hope everyone is doing good and please, as usual contact me if you have any questions!

Chris

Zoo Day

Hey Everyone...
We just go back from the ZOO and Cammie had a blast. The monkey's seem to be her favorite.

April is going to be the big push month for the Cystic Fibrosis Foundation's Great Strides. This is their annual walk that helps raise vital money for a cure. If you are interested in donating please visit our website at http://www.cff.org/Great_Strides/ChrisNaff6393

EVERY DOLLAR HELPS!!!!!!