CFF Shoot for a Cure & Prosperity Bank Meet and Greet

Well the past few days have been a busy one.
On Tuesday I helped out our local Cystic Fibrosis Foundation chapter at their annual Shoot for a Cure. This is a fundraising event that helped raise an estimated $40,000!!! The Shoot for a Cure is a sporting clay event were appox. 25 teams competed. This was a great event! You can find some pictures here: http://photos.jacksonville.com/mycapture/category.asp?eventID=967516&CategoryID=10519

Today Cammie and I met the folks from Prosperity Bank in St. Augustine to help them kick off their Great Strides fundraising effort. Cammie and I both helped raise awareness for CF and explained what we do on a daily basis to help combat this disease. This will be the second year that Prosperity Bank has formed a team for the St Augustine Great Strides! Woo Hoo! They really are a great bunch of people and we are really looking forward to working more with them.

Tomorrow should be a pretty calm day since I need to work. So I will keep everyone posted!

A Brief Introduction

Since this is my first blog, I'd figure why not introduce myself. My name is Chris and my daughter Cammie who is 2 1/2 has Cystic Fibrosis (CF). Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the US. A defective gene and its proten product cause the body to produce unusually thick, sticky mucus that: Clog the lungs and leads to life-threatening lungs infections; obstucts the pancreas and stops natural enzymes from helping the body break down and absorb food. And believe me this is just the disease in brief.

Cammie was diagnosed at 5 months and for the most part has been pretty healthy. She has a daily routine which includes a number of preventative treatments. This treatments include nebulziers daily and a machine called the "Vest". The "Vest" is a airway clearence devise that pretty much vibrates her lungs to get the sticky mucus broken up and out. On top of that she swallows on average 20 pills every day just to digest her food. Everytime she eats she takes pills.

Even though Cammie has CF she maintains a normal 2 year old's life. She enjoys the zoo, playing outside, and of course keeping mommy and daddy busy.

I'm going to use this blog to keep everyone up to date on Cammie and things going on in the CF community. So please stay tuned for more posts.